Curing the Epilepsies 2020: Setting Research Priorities

Epilepsy Research Benchmarks

The NINDS sponsored Curing Epilepsy conference series is held in partnership with epilepsy advocacy and nongovernmental organizations to critically examine the research progress in epilepsy research and to help set an agenda for years to come. An important and fruitful outcome of the discussions from the conference (2000, 2007, and 2013) has been the production of the Benchmarks for Epilepsy Research, which reflect current priorities shared across the epilepsy community for clinically meaningful research advances in understanding and treating the epilepsies. Since their introduction in 2000, the Benchmarks have served as guideposts in the epilepsy research community by bringing attention to goals such as preventing epileptogenesis, addressing features of epilepsy beyond that of seizures, and confronting the challenge of sudden unexpected death in epilepsy (SUDEP).

Benchmarks Breakout Sessions

We will wrap up the first two conference days with in-depth discussion breakout sessions inviting all meeting attendees to provide input for updates to the Epilepsy Research Benchmarks lasting for the next 5-10 years. Breakout groups will meet (one for each Benchmark) to discuss potential updates to the content and organization of these goals. On the third and final conference day, a full group session will develop a formal summary of the benchmarks and proposed changes. It is our aim that discussions are guided by the presentations and general discussions had during the conference sessions.  

Request Information (RFI)

As part of the 2020 Curing the Epilepsies Conference, NINDS is seeking ideas on how to shape the Epilepsy Research Benchmarks moving forward. Participants are encouraged to submit RFI responses with comments and suggestions regarding the current 2014 epilepsy research benchmarks and that identify new or ongoing research priority challenges and opportunities. Please submit at https://grants.nih.gov/grants/guide/notice-files/NOT-NS-20-025.html. The deadline to submit is February 20th, 2020.

2014 NINDS Benchmarks for Epilepsy Research

I. Understand the causes of the epilepsies and epilepsy-related neurologic, psychiatric, and somatic conditions.

II. Prevent epilepsy and its progression.

III. Improve treatment options for controlling seizures and epilepsy-related conditions without side effects.

IV. Limit or prevent adverse consequences of seizures and their treatment across the lifespan.

Click here for a detailed listing of the 2014 Epilepsy Benchmarks.

Click Here for Progress Revew Manuscripts of the 2014 Epilepsy  Benchmarks: https://journals.sagepub.com/toc/epib/20/1_suppl

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