Curing the Epilepsies 2020: Setting Research Priorities

Epilepsy Research Benchmarks

The NINDS sponsored Curing Epilepsy conference series is held in partnership with epilepsy advocacy and nongovernmental organizations to critically examine the research progress in epilepsy research and to help set an agenda for years to come. An important and fruitful outcome of the discussions from the conference (2000, 2007, and 2013) has been the production of the Benchmarks for Epilepsy Research, which reflect current priorities shared across the epilepsy community for clinically meaningful research advances in understanding and treating the epilepsies. Since their introduction in 2000, the Benchmarks have served as guideposts in the epilepsy research community by bringing attention to goals such as preventing epileptogenesis, addressing features of epilepsy beyond that of seizures, and confronting the challenge of sudden unexpected death in epilepsy (SUDEP).

Requesting Input on Epilepsy Research Benchmarks

As part of the 2020 Curing the Epilepsies Conference, The AES Epilepsy Research Benchmarks Committee has updated and revised the Epilepsy Research Benchmarks and we welcome your input! Please provide your feedback, comments and ideas on the new 2020 Epilepsy Research Benchmarks using the NINDS Public Crowdsourcing Community: https://ninds.ideascalegov.com.

To provide feedback:

  1. Go to: https://ninds.ideascalegov.com
  2. You will be asked to Register by providing an email address and a password (a unique password that you select) (your email will not be shown)
  3. Upon completing the registration process, go to your inbox to verify your email address by clicking on the link within the verification email sent to you (you may need to check your spam folder for the email)
  4. Clicking the link and inputting the verification code from your email will bring you inside the NINDS Community account where you will set your password and then complete your community profile. Please complete all required fields.
  5. Once you login to the NINDS Crowdsourcing Community, navigate to the right side of the screen where you will see “Active Campaigns” and click on “2020 Epilepsy Research Benchmarks”


2020 Epilepsy Research Benchmarks

I. Understand the causes of the epilepsies and their relationship to epilepsy-associated neurologic, psychiatric, and somatic conditions.

II. Prevent epilepsy and its progression.

III. Improve treatment options for controlling seizures and epilepsy-related conditions while limiting side effects.

IV. Limit, treat, or prevent co-occurring conditions associated with epilepsy across the lifespan in general and special epilepsy populations.

Click here for a detailed listing of the 2020 Epilepsy Benchmarks.

Click Here for Progress Review Manuscripts of the 2014 Epilepsy  Benchmarks: https://journals.sagepub.com/toc/epib/20/1_suppl


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