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ICCS and SRHSB Joint Conference

Speakers

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David Limbrick
Dr Limbrick is a pediatric neurosurgeon who focuses on treating children with epilepsy, hydrocephalus, brain tumors and performing epilepsy surgery, neuro-endoscopy, deep brain stimulation, radiosurgery, and pediatric spinal surgery. Dr. Limbrick has been recognized in "The Best Doctors in America" list.
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Michael Williams
Dr. Michael Williams is director of Adult and Transitional Hydrocephalus and CSF Disorders. He is a UW professor of neurology and neurological surgery, and an expert in idiopathic normal pressure hydrocephalus (iNPH), hydrocephalus in young and middle-aged adults, hydrocephalus in young adults making the transition from pediatric specialists to adult specialists, and in pseudotumor cerebri, also known as idiopathic intracranial hypertension.

Dr. Williams received a bachelor's degree from Valparaiso University, and his M.D. from Indiana University School of Medicine in Indianapolis. He had an internship at Methodist Hospital of Indiana, and trained in neurology at Indiana University Medical Center. He then had a fellowship in neurosciences critical care at Johns Hopkins Hospital.


Dr. Williams has been an expert in the field of hydrocephalus and CSF disorders for over 25 years. He first developed his expertise in the management of acute hydrocephalus in patients in the NeuroICU, and then began to use the same diagnostic and treatment methods for patients with chronic forms of hydrocephalus. He established centers at Johns Hopkins Hospital and at Sinai Hospital of Baltimore before coming to the University of Washington in 2016.

Dr. Williams is board certified in adult neurology, and is a member of the American Academy of Neurology and the American Neurological Association. He helped to create the International Society for Hydrocephalus and CSF Disorders and is a past president of the society. He was co-chair of the first NIH workshop on hydrocephalus in 2005. He is a founding member of the Adult Hydrocephalus Clinical Research Network. He has long been active in patient advocacy with the Hydrocephalus Association, and is currently a member of its board of directors and its medical advisory board. He is a on the Scientific Advisory Board for the Intracranial Hypertension Research Foundation.
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Sharon Levy
After completing his nurse training, Sharon continued to develop his professional practice in a variety of community based care environments. The Post Graduate qualifications in IT were critical for his first clinical informatics role of a Project Nurse in Perth and Kinross NHS Trust.

In 1999 Sharon moved to be based at the University of Abertay, in Dundee, where he was teaching and working on his research thesis on remote healthcare provision for older adults.

Sharon joined the Royal College of Nursing in 2002 as the UK informatics adviser - a post he held until 2007. After a short career break abroad, Sharon re-joined the NHS as a Telehealth Nurse Specialist, a post he held until 2012.

Sharon is currently a Programme Director for a number of MSc pathways at Nursing Studies. His main research interests and activities focus on eHealth and digital nursing. He actively supports efforts by Spina Bifida Hydrocephalus Scotland to design better ways for young people to transition onto adult healthcare services.
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Mark Luciano
Dr. Mark Luciano is the director of the Johns Hopkins Cerebral Fluid Center. A renowned leader in treating hydrocephalus, Dr. Luciano is distinguished both nationally and internationally for his research and educational and clinical work in neuroendoscopy.

Dr. Luciano treats adults with hydrocephalus, pseudotumor cerebri, intracranial hypotension, Chiari malformations, and cerebral and spinal cysts. He has significant expertise treating children and adults with cerebrospinal fluid leaks and congenital disorders.
Among his accomplishments in neuroscience research and biomedical engineering are his investigation of the cerebrovascular response to hydrocephalus and the invention of a unique device for control of intracranial pressure (ICP) pulsatility to increase blood flow. His National Institutes of Health-funded studies have explored prolonged compression and hypoxia in the brain as a result of hydrocephalus, as well as the interaction between cerebrospinal fluid and vascular systems.
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Paul Austin
Dr. Austin specializes in pediatric urology and fetal urology: prenatal intervention for hydronephrosis, renal dilation, endopyelotomy, disorders of the penis, ectopic ureters, ureteroceles, buccal mucosal urethral replacement, hypospadias, bladder exstrophy, urogenital sinus anomaly, cloacal anomaly, epispadias, prune belly syndrome, enuresis, neurogenic bladder, myelomeningocele, testicular cancer and urological cancer. Dr. Austin is a diplomate of the American Board of Urology with subspecialty certification in pediatric urology. Currently there are less than 150 practicing physicians in the US that have this certification. Dr. Austin is consistently recognized in "The Best Doctors in America" list.
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Pat McAllister
Dr. McAllister received his Ph.D. from Purdue University in 1976, and following postdoctoral training at the University of Vermont School of Medicine, has held staff positions at the UCLA Mental Retardation Research Center, Temple University School of Medicine, the Cleveland Clinic Foundation, and the Detroit Medical Center/Wayne State University and the University of Utah prior to arriving at Washington University. Dr. McAllister has dedicated 25 years to the study of hydrocephalus, and recently was given the Robert H. Pudenz Prize for Excellence Cerebrospinal Fluid Physiology and Hydrocephalus by the International Society for Pediatric Neurosurgery.
By working closely with bioengineers and pediatric neurosurgeons, he has turned the current efforts in the lab towards approaches that could supplement surgical treatments (cerebrospinal fluid shunting) by protecting neurons or promoting regeneration in the hydrocephalic brain, understanding the role that intracranial pressure and pulsatility play in hydrocephalus, and developing shunt systems that resist cellular obstruction or function as “smart” drainage systems that monitor physiological changes. Finally, he consults with various neurosurgical instrumentation companies, has written FDA applications, and holds 4 patents.
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Samer Elbabaa
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Dan Wood
Dan’s principle surgical interest is in major lower urinary tract function and reconstruction in adolescence – particularly with congenital anomalies. He performs major surgical reconstruction for patients with conditions such as bladder exstrophy, disorders of sex development, spina bifida. With an expertise in augmentation and substitution cystoplasty, ileal conduit, mitrofanoff channels and genitoplasty including vaginal reconstruction.

Dan did his research and gained his PhD in 2003 with Professor Chris Fry at UCL looking at cultured bladder cells and their physiology. He continues to maintain a research interest in cell culture and its application, as well as long term outcomes in adolescent urology.

He is an Editor of the Journal of Paediatric Urology, Chairman of the newly formed Congenital Lifelong Urology Working Group in Europe, Patron of the Mitrofanoff Support Charity and a Trustee of the St Peter’s Trust. He is an alumnus of the NHS Staff College Leadership training programme.
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Olivia Maccoux
Ms. Maccoux was born with hydrocephalus, but many of her classmates and members of her community would not know she has had over 100 surgeries since birth. Olivia plays several contact sports, is an undergraduate majoring in Communication Studies at Augsburg College in Minneapolis MN USA with all A’s and B’s, and a very inspiring advocate for research in hydrocephalus. She is passionate about all that she does and she and her family participate in many events for the Hydrocephalus Association (http://www.hydroassoc.org). In addition to being a front-line witness on transition of care, Olivia believes that hydrocephalus doesn’t define who people are, saying "We want people to support us, but not treat us differently”.
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