Health Insite - A Commonwealth Government of Australia website providing a very good overview of conditions, diseases, support groups, medical facilities and more. Very user friendly with an excellent search capacity.
Nutrition4me - This site is designed for Australians with an inborn error of metabolism (IEM) and their carers. There are links to many articles and resources for parents/carers, recipies and includes an online order facility for a wide range of low protein products.
PKU News for South Aussies - Offers a range of comprehensive fact sheets, guides, explanations - most reprinted from medical or other well-regarded organisations. An excellent source of information for families with PKU anywhere in Australia.
SELF-HELP OR FAMILY-SUPPORT GROUPS - International
National Coalition for PKU and Allied Disorders - Based in the USA, this group has a strong history in lobbying and are heavily involved in conference organisation in the United States to bring together affected families and health professionals. Check out their website - a great read with lots of up to date information.
National Urea Cycle Disorder Foundation - This group is based in America and their main focus is supporting and educating families affected by UCD. Their website is excellent and they have had some good wins in securing funding for gene therapy research and trials.