2020 RYR-1 Foundation International Family Conference

July 31 - August 2, 2020
Hilton Orlando Bonnet Creek
Orlando, FL, USA 


The RYR-1 Foundation held the first ever RYR-1 International Family Conference in July 2016 in Baltimore, MD and the second RYR-1 International Family Conference in July 2018 in Pittsburgh, PA. Combined, these events have hosted 388 attendees, representing 75 RYR-1-affected families from 31 states and eight countries. These conferences are unique opportunities for affected individuals and families to meet, learn from world-renowned experts, form friendships, and develop a genuine RYR-1 community. To learn more about the family conferences, please visit: www.ryr1.org/conferences


For a rare condition like RYR-1-related diseases, providing a forum for affected individuals and families to meet others like them has a significant psychological value. When affected individuals or their family members seek others who understand what they are experiencing, a Family Conference becomes an invaluable and necessary resource. It is a goal of the RYR-1 Foundation to enhance and enrich these relationships within the RYR-1 community by hosting international family conferences every other year.

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