Encephalitis is a devastating condition whose impact upon people should not be underestimated. It robs people of abilities most of us take for granted, it leaves people without their loved ones, and even in those families where the person affected survives the person they once knew can be dramatically changed.
Life After Encephalitis provides a unique insight into the experiences of those affected by encephalitis, sharing the rich, perceptive, and often powerful, narratives of survivors and family members. It shows how listening to patient and family narratives can help us to understand how they make sense of what has happened to them, and also help professionals better understand and engage with them in practice. The book will also be useful for considering narratives associated with brain injuries from other causes, for example traumatic brain injury.
Life After Encephalitis will appeal to a wide range of professionals working in rehabilitation settings, and also to and survivors of encephalitis, their families, and carers.
"I always thought I was a one-off; unique. Back then I had no one to share my experience with…If this book had been available then, I would have realised others had gone, and were going through, similar things to me." – Simon Hattenstone, Journalist and features writer, The Guardian
"Life After Encephalitis has given a voice to the millions of people worldwide affected by this horrible condition. As the sister of someone who fought her own battle with encephalitis, I believe it was important that my mum contributed to Ava’s book so that others can take some comfort in knowing they are not, and never will be alone." – Rebecca Adlington, OBE
"This is a wonderful book. Ava Easton says in the preface to Life After Encephalitis that she hopes that it gives a voice to survivors of encephalitis. It does. It is a book of stories from which we learn what encephalitis is and how it affects the brain, but more importantly how it changes the lives of those who survive it." – Professor Jon Evans, University of Glasgow
"I was absolutely delighted to provide the cover image for such an important book. Having met several survivors of encephalitis I realised how deeply this condition impacts on their lives. Ava’s book does a fantastic job in sharing some of their stories whilst also empowering professionals, and I’m sure it’ll go a long way to improving understanding and care of encephalitis survivors and those left bereaved by the condition." – Bill Ward
"When my husband suffered a brain injury we were plunged into an unknown landscape with no knowledge at all of how to cope or what had even happened. This immensely readable book provides immediate insight, help and knowledge of Encephalitis and will be an invaluable guide to anyone who has to deal with this frightening condition" – Kika Markham
"Dr Ava Easton has done something remarkable with this book: she has given life and support to patients and families living through this silent disease. From the first-person cases to the in-depth research and passionate dedication to her work as the head of the Encephalitis Society, Ava Easton has given us a gift with this tremendously important book." – Susannah Cahalan, author of Brain On Fire: My Month of Madness
Read what the Lancet have said about Life after Encephalitis here.
Ava Easton is a health scientist and researcher specialising in encephalitis, acquired brain injury, and neuro-narratives. She has worked at The Encephalitis Society since 2000, and became Chief Executive in 2011. Ava is also an Honorary Fellow at the University of Liverpool and lectures around the world on encephalitis and its consequences. .
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