| Forward | View web version » |
|
|
| Making Patient Registries Count in the Research Process |
The medical R&D community increasingly wants to incorporate patient input into the R&D process, and that is a good thing. Patient registries are powerful tools in achieving this goal and have evolved to become more than just a collection of patient contacts. Now, patient registries inform natural history studies, assist clinical trial recruitment, facilitate safety monitoring, allow for patient participation in research and much more.
In a new FasterCures report, Expanding the Science of Patient Input: Building Smarter Patient Registries, we aim to establish reliable methods and practices for understanding and incorporating patient needs into the process of developing, regulating and delivering new therapies. The report features key insights, survey results and emerging best practices – from getting started to sustaining and maintaining a patient registry to generating meaningful outcomes. Continue reading » |
|
| PROGRAM HIGHLIGHTS |
Workshop Brings Together Experts on Patient Engagement
During a recent workshop hosted by FasterCures with support from Pfizer, nearly 50 experts in patient engagement gathered in Washington to discuss what’s getting traction, where resistance occurs and how practices are developing in different sectors and areas of disease focus. Through its Patients Count program, FasterCures remains steadfastly committed to taking a leading role to enact the recommendations generated during the workshop and strongly encourages broad participation by stakeholders across the biomedical ecosystem to realize the potential for continued collaboration and coordinated action.
|
|
View Archive of Recent Webinar on the Future of Research-by-Collaboration
Collaboration doesn’t always come easily, but it is a major key to success in the biomedical research and development environment. In the first FasterCures Webinar of 2016, a panel of experts — Jane Larkindale of Critical Path Institute, Dalvir Gill of TransCelerate BioPharma and ShaAvhrée Buckman-Garner of the Center for Drug Evaluation and Research at the FDA, and moderated by Margaret Anderson — addressed how to ensure that these collaborations maximize their value to the ecosystem and create thoughtful, productive partnerships. |
|
|
|
FasterCures Praises FDA Commissioner Califf’s Confirmation
Robert Califf, a renowned cardiologist, has decades of experience running and evaluating clinical trials and maintains a deep understanding of the fast-moving science and the diverse stakeholders in government, academia, industry and the patient community. FasterCures looks forward to working with Commissioner Califf to advance the science of patient input; he is the leader that the FDA needs to fulfill its vital mission of protecting the public’s health.
|
|
Discover Research Collaborations in Consortia-pedia
FasterCures’ Consortia-pedia Catalogue contains profiles on more than 400 research consortia around the globe. For example, you can find that 14 consortia are working on Parkinson’s disease research, engaging in efforts to identify biomarkers, developing tools for broader use, conducting basic research and focusing on developing products for patients.
|
|
Reports Highlight Critical Funding Gaps in Research
In the past year, the Philanthropy Advisory Service has released several disease landscape reports, focusing on Alzheimer’s disease, small cell lung cancer, Parkinson’s disease, leukemia and more, which highlight promising research efforts and identify critical funding gaps that need to be filled to advance new treatments.
|
|
| BUZZWORTHY |
|
| ARTICLES
|
|
|
|
|
|
| ©2016 Milken Institute | 1101 New York Avenue, NW | Suite 620 | Washington, DC | +1 202 336 8900 |
|
|