Even though the winter months bring colder weather for most, that doesn’t mean we have to stay indoors. Sajel Elizabeth Streb (above), daughter of NICHQ’s Director of Programs Karthi Streb, seems ready to remind us to bundle up, get out there and stay active.
In Other News
Radio interview with NICHQ’s Dr. Suzette Oyeku about sickle cell disease. more>>
Stony Brook University Hospital changes maternity care culture through NICHQ initiatives. more>>
NICHQ’s Tom Dahlborg blogs about a healthcare improvement approach he calls LOVE (Listen, Observe, Visit, Engage). more>>
The New York Times reports on lowered rates of childhood obesity in several US cities. more >>
New research shows that kids with sickle cell disease need more help transitioning to adult care. more>>
Bob Wright of Autism Speaks calls for a national autism strategy. more>>
Our Areas of Focus
- Sickle Cell Disease
- Neonatal Care
- Medical Home
- Newborn Hearing
Stay In Touch With Us!
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|Following Up on the Promise of Newborn Screening
In this month’s leadership message, Patricia Finnerty, MS, operational lead for NICHQ’s newborn hearing and sickle cell projects, reflects
on the 50th anniversary of the newborn screening program. "It’s time for us to completely fulfill the promise of the program begun 50 years ago by ensuring all children receive appropriate follow-up care and services," she says.
|Kwaku Ohene-Frempong Shares a Global Perspective on SCD
As the faculty chair of NICHQ’s Working to Improve Sickle Cell Healthcare (WISCH) project, Dr. Kwaku Ohebe-Frempong discusses
the importance of sickle cell screening and disparities between the US and abroad. "If we can take what we learn from the [WISCH teams] to teach other states, programs, and treatment centers, we can help the country move forward to implement the best practices in patient care and newborn screening," he says.
|Transitioning Into a Patient-Centered Medical Home
With a year under their belts as part of the CHIPRA Massachusetts Medical Home Initiative, 13 pediatric practices are transforming their offices into patient-centered medical homes. Read about
the steps that have been most successful.
|Learn How to Promote Healthy Weight in Your Community
NICHQ has compiled helpful, insider resources from the Collaborate for Healthy Weight initiative for public use. Check out our new Healthy Weight Collaborative Action Kit
to start promoting healthy weight and making change in your community.
|Exploring New Technology for Managing Sickle Cell Disease
NICHQ is excited to announce
that we are collaborating with the healthcare consulting firm The Lewin Group to improve the care of people with sickle cell disease. The project will explore whether electronic technology, like a smart phone app or a website, can help patients with sickle cell disease manage their care.
|Healthy Weight Collaborative Phase 2 Team Snapshot
Holmes County, Ohio, is one of 39 communities participating in the second phase of the Healthy Weight Collaborative. Read how
this church-based team is introducing healthy eating and cooking to their congregants.