Special Issue: Sickle Cell Awareness Month
NICHQ is honoring Sickle Cell Awareness Month in September with an issue dedicated to work and accomplishments in this area. Children and adults with sickle cell disease, like Damali and Amiel Reid (pictured above), grown children of NICHQ staffer, Lynnie Reid, inspire us every day to work to improve sickle cell healthcare.
In Other News
An article in the Baltimore Sun highlights the work of one of our WISCH teams. more>>
A teenager with sickle cell disease pays tribute to her uncle. more>>
New study shows Vitamin D treatment may reduce pain in sickle cell patients. more>>
President Obama declared September 2012 Nat’l Childhood Obesity Awareness Month. more>>
Being nursed may lower risk of developing depression in adulthood. more>>
Our Areas of Focus
- Sickle Cell Disease
- Neonatal Care
- Medical Home
- Newborn Hearing
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Why Sickle Cell Awareness Month Is Important to Me
In this month’s Leadership Message, NICHQ’s President and CEO, Dr. Charlie Homer, explains why sickle cell awareness month is important to him. “I believe the performance of our healthcare system is defined best by how we care for our most needy and vulnerable patients. And how we care for sickle cell disease patients leaves a lot to be desired,” he says.
New Video Highlights Improvements in Sickle Cell Care
Watch our new video highlighting how teams in the Working to Improve Sickle Cell Healthcare (WISCH) initiative are using quality improvement methods to improve care for people living with sickle cell disease.
Q&A with Lynnie Reid, Sickle Cell Parent and Professional
Lynnie Reid, NICHQ’s Senior Manager of Patient and Family Partnerships, went from being a young mother who knew nothing about sickle cell disease to becoming a passionate champion for people affected by the blood disorder. Read a Q&A with Lynnie to learn about her personal and professional journey.
NICHQ Publishes Journal Article on Sickle Cell Care
NICHQ staffers have published an article in the Journal of Health Care for the Poor and Underserved on our collaborative work to improve care for people living with sickle cell disease.
Read the article summary and full text for free.
Faster Pain Treatment for Kids with Sickle Cell Disease
Providers at the Boston Medical Center have slashed in half the time it takes to deliver pain medications to sickle cell patients in their pediatric emergency department, collaborating with the WISCH initiative. Read about how they did it.
Reducing ER Visits for Sickle Cell Patients
The Tennessee team in the WISCH project is striving to provide accessible and affordable care to adult sickle cell patients who have stopped seeking primary care support because they do not have insurance. Read their story.